Resources & Links

Clinical trials can feel complicated, but there are many trusted resources available to help you learn, stay informed, and connect with support. This page is your guide to reliable sources, from official registries to patient advocacy groups.

1. Clinical Trial Registries

These websites list ongoing and completed clinical trials. They are reliable, updated frequently, and a good starting point if you’re looking for a trial that might fit your needs.

• ClinicalTrials.gov – A U.S. government database of public and private clinical studies around the world. You can search by condition, location, or type of trial.

• WHO International Clinical Trials Registry Platform (ICTRP) – A global registry that aggregates trials from multiple countries, helping patients find international study opportunities.

2. Patient Advocacy Groups

These organizations provide guidance, education, and support for patients and caregivers. They often include information about clinical trials relevant to specific conditions:

• Alzheimer’s Association – Information, support, and clinical trial listings for patients and caregivers dealing with Alzheimer’s disease.

• American Cancer Society – Education on cancer clinical trials, including what to expect and how to participate safely.

• Cystic Fibrosis Foundation – Support for patients and families, including clinical research opportunities and trial registries..

3. Government & Hospital Research Pages

Official research pages are trustworthy sources of information on ongoing studies, patient rights, and safety standards:

• U.S. Food and Drug Administration (FDA) – Clinical Trials – Overview of clinical trial regulations, patient rights, and safety protections.

• National Institutes of Health (NIH) – Educational materials on participating in clinical trials, including patient-focused guides.

• Hospital research portals – Many hospitals maintain pages listing ongoing trials and educational resources for patients.

4. Educational Videos & Publications

Learning visually or reading plain-language materials can make clinical trials easier to understand:

• YouTube – Patient-friendly Clinical Trial Guides – Some hospital systems, nonprofits, and advocacy groups publish short, clear videos explaining clinical trials step by step.

• PubMed Health / MedlinePlus – Trusted summaries and articles for patients on research studies, conditions, and treatments. (medlineplus.gov)

Reliable information is the first step toward confident participation in a clinical trial. Use these resources to:

• Explore trials that may be right for you

• Learn about patient rights and safety

• Connect with support networks for patients and caregivers

Remember: Always discuss any trial or information you find with your doctor or research team before making decisions.